23andMe, the prominent consumer genetic testing company, filed for Chapter 11 bankruptcy on March 23, 2025, due to declining demand for its services and a significant data breach affecting millions of users. Co-founder Anne Wojcicki resigned as CEO but remains on the company’s board.
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Implications for Customer Genetic Data
The bankruptcy raises concerns about the future handling of the genetic data of 23andMe’s 15 million customers. While the company assures that current data storage and protection practices will continue during the bankruptcy process, experts advise customers to take proactive steps to safeguard their information.
Recommended Actions for Customers
- Delete Your Account and Data: To ensure your genetic information is not transferred to potential new owners, consider deleting your 23andMe account and associated data. This can be done through your account settings on the 23andMe website.
- Opt Out of Research: If you prefer that your data not be used for research purposes, you can update your consent preferences in your account settings.
- Request Sample Destruction: Customers concerned about physical DNA samples can contact 23andMe to request their destruction. Details on how to make this request are available on the company’s website.
Legal and Privacy Considerations
Current privacy laws offer limited protection for genetic data. While the Genetic Information Nondiscrimination Act (GINA) provides some safeguards, it does not cover all potential misuse scenarios. State laws vary, and in some cases, such as California, stronger protections are in place. However, these laws may not prevent the sale or misuse of genetic data under new ownership.
Given the uncertainties surrounding 23andMe’s bankruptcy proceedings and the potential transfer of customer data, users concerned about their privacy should consider deleting their accounts and opting out of data sharing. Staying informed about the company’s actions and any changes to its privacy policies is also advisable
